Saturday, June 19, 2021

UPDATE...


So...since my last "medical" update things have gotten worse. My Glaucoma has gotten worse so now I take, Timolol Maleate 0.25% Opht Sol 5ml one drop each eye in the morning, Olopatadine 0.1% Opth Soln 5ml one drop each eye twice/day and Latanoprost 0.005% Ophth Soln 2.5ml one drop each eye at bedtime.

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My Autoimmune disorders have gotten worse so now I'm on an infusion medication called Actemra (https://www.actemra.com/ra/taking-actemra/taking-actemra-iv-infusions.html). My hearing loss has also gotten worse in my right ear, I'm at 65% hearing loss now in that ear. Nothing can be done about that at this point and when the time comes all I can do is have surgery to become completely deaf.

I will be finding out my neuropsych test results on 6/25/2021, this ought to be interesting and I will have to do an update on this at a later time. I have been diagnosed with Type 2 diabetes but the medications I have tried so far made me breakout into a rash or caused GI issues and I have enough GI issues.

Come September I will be seeing a spine specialist at UW Hospital in Madison, WI because I have multiple spine disorders/diseases including but not limited to: Spondylolisthesis, Kyphoscoliosis, Spondylitis, Osteoarthritis, DDD (Degenerative Disc Disease), Broad-Based Central Disc Protrusions at the C4-5, C5-6, and C6-7. 



To date my conditions consists of:

Rheumatoid Arthritis
Spondylolisthesis
Kyphoscoliosis
Spondylitis
Diverticula(osis/itis)
Colitis
Connective Tissue Disease
Chronic GERD 
Irritable Bowel Syndrome W/ Constipation
Chronic Nausea
Primary Open Angle Glaucoma
Fibromyalgia
COPD/Asthma
Chronic Headaches
Chronic Pain/Fatigue
Chronic Autoimmune Gastritis
Meniere's Disease
Anxiety/Depression
Leukocyte Disorder (Leukocytosis)
Hypokalemia (Potassium Deficiency)
Vitamin B12/D Deficiency
Immunodeficiency (Due to Drug Therapies)
Vertigo/BPPV (Benign Paroxysmal Positional Vertigo)
Bilateral Leg Edema
Polymyalgia
High Blood Pressure
Non-Alcoholic Fatty Liver Disease
Type 2 Diabetes
Sjogren's Disease
Nuclear Sclerosis of Both Eyes
White W/out Pressure of Peripheral Retina of Both Eyes
Lattice Degeneration of Peripheral Retina, Right Eye.
Osteoarthritis
DDD (Degenerative Disc Disease)
Broad-Based Central Disc Protrusions at the C4-5, C5-6, and C6-7 
White Brain Matter Disease with either
Chronic Microvascular Ischemic Disease or old Demyelinating Disease.
ICD-10 DIAGNOSES
Major Depressive Disorder, recurrent episode, mild (F33.0)
Persistent Depressive Disorder (Dysthymia)(F34.1)
Mild Neurocognitive disorder, due to other
medical conditions (G31.84)

As time goes on I'm sure this list will grow and my medication list consists of 27 different medications, four of those are supplements. 

Most people would look at this and wonder why I'm not getting Social Security Disability yet, I am wondering the same thing. I have been fighting for it since the end of 2018 and keep getting denied. I'm wondering if I need to have one foot in the grave before I'll get it, I will not give up though.



Any help would be much appreciated whether it's money, gift cards or you can send items to me. Message me and I will give you a mailing address. GoFundMe, PayPal and Wishlist for me and my furbabies are listed on the left side of my blog page, and I will also include links below.

I will continue to post updates as they come along.

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