What do you say to someone who tells you "At least you're not dying". I HATE IT WHEN PEOPLE SAY THESE THINGS TO ME!! I am incurable and my life expectancy has been shortened by these autoimmune diseases that are slowly destroying me on the inside. Here are a few more things I wish people would stop saying to me:
1) Be positive-I do my very best to be positive every single day whether I can crawl my ass out of bed or not. I try and sometimes fail but at least I am not giving up.
2) Get out and exercise-Seriously? Sometimes I don't have the balance to get from my bed to the bathroom without falling over or I'm incapable of wiping my own ass because it hurts to move my arm in the position in needs to be in.
3) Change your diet-While I have gone through some dietary changes it's hard to totally eat properly especially when you can't stand up long enough to prepare a meal. Not to mention that food is so damn expensive and when you don't have the income to eat expensively healthy you do the best with what you have.
4) At least you don't have cancer-While cancer is a horrible disease and has taken many people that I love it isn't necessarily going to kill you immediately either. Many people go into remission for many years and live normal long lives. It's the same with people who are diagnosed with autoimmune diseases, it's a roll of the dice.
5) Things could be worse-The only thing I can think of that would be worse is if I were 6-8 feet under and even then it wouldn't be worse for me but for everyone else that loves and cares about me. NO...I do not wish this nor am I suicidal but what could be any worse than living each day in constant pain, dizziness, nauseated, headaches, numbness, being clumsy and not on purpose, not being able to walk at times. The list goes on but I won't.
6) I know how you feel, I'm tired too-NO...there is a difference between being tired and fatigue. LOOK IT UP!!
I just wish people would think and educate themselves sometimes before they speak.
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