Saturday, June 19, 2021

UPDATE...


So...since my last "medical" update things have gotten worse. My Glaucoma has gotten worse so now I take, Timolol Maleate 0.25% Opht Sol 5ml one drop each eye in the morning, Olopatadine 0.1% Opth Soln 5ml one drop each eye twice/day and Latanoprost 0.005% Ophth Soln 2.5ml one drop each eye at bedtime.

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My Autoimmune disorders have gotten worse so now I'm on an infusion medication called Actemra (https://www.actemra.com/ra/taking-actemra/taking-actemra-iv-infusions.html). My hearing loss has also gotten worse in my right ear, I'm at 65% hearing loss now in that ear. Nothing can be done about that at this point and when the time comes all I can do is have surgery to become completely deaf.

I will be finding out my neuropsych test results on 6/25/2021, this ought to be interesting and I will have to do an update on this at a later time. I have been diagnosed with Type 2 diabetes but the medications I have tried so far made me breakout into a rash or caused GI issues and I have enough GI issues.

Come September I will be seeing a spine specialist at UW Hospital in Madison, WI because I have multiple spine disorders/diseases including but not limited to: Spondylolisthesis, Kyphoscoliosis, Spondylitis, Osteoarthritis, DDD (Degenerative Disc Disease), Broad-Based Central Disc Protrusions at the C4-5, C5-6, and C6-7. 



To date my conditions consists of:

Rheumatoid Arthritis
Spondylolisthesis
Kyphoscoliosis
Spondylitis
Diverticula(osis/itis)
Colitis
Connective Tissue Disease
Chronic GERD 
Irritable Bowel Syndrome W/ Constipation
Chronic Nausea
Primary Open Angle Glaucoma
Fibromyalgia
COPD/Asthma
Chronic Headaches
Chronic Pain/Fatigue
Chronic Autoimmune Gastritis
Meniere's Disease
Anxiety/Depression
Leukocyte Disorder (Leukocytosis)
Hypokalemia (Potassium Deficiency)
Vitamin B12/D Deficiency
Immunodeficiency (Due to Drug Therapies)
Vertigo/BPPV (Benign Paroxysmal Positional Vertigo)
Bilateral Leg Edema
Polymyalgia
High Blood Pressure
Non-Alcoholic Fatty Liver Disease
Type 2 Diabetes
Sjogren's Disease
Nuclear Sclerosis of Both Eyes
White W/out Pressure of Peripheral Retina of Both Eyes
Lattice Degeneration of Peripheral Retina, Right Eye.
Osteoarthritis
DDD (Degenerative Disc Disease)
Broad-Based Central Disc Protrusions at the C4-5, C5-6, and C6-7 
White Brain Matter Disease with either
Chronic Microvascular Ischemic Disease or old Demyelinating Disease.
ICD-10 DIAGNOSES
Major Depressive Disorder, recurrent episode, mild (F33.0)
Persistent Depressive Disorder (Dysthymia)(F34.1)
Mild Neurocognitive disorder, due to other
medical conditions (G31.84)

As time goes on I'm sure this list will grow and my medication list consists of 27 different medications, four of those are supplements. 

Most people would look at this and wonder why I'm not getting Social Security Disability yet, I am wondering the same thing. I have been fighting for it since the end of 2018 and keep getting denied. I'm wondering if I need to have one foot in the grave before I'll get it, I will not give up though.



Any help would be much appreciated whether it's money, gift cards or you can send items to me. Message me and I will give you a mailing address. GoFundMe, PayPal and Wishlist for me and my furbabies are listed on the left side of my blog page, and I will also include links below.

I will continue to post updates as they come along.

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Friday, April 16, 2021

MY RETURN TO GOD

 



I have chosen to enter into the life of the Catholic church because I have been called back to our Lord & Savior’s arms. I wish to reaffirm my relationship, praise and honor Him. He is my only path to salvation and everlasting life. 

My life with Jesus began when I was very young, Baptized and Confirmed in the Episcopalian Church, or “The Church of England”. This of course was not by choice and my Mother, being raised Catholic herself, did not choose this for me, my stepmother did. I however was obedient and loved Jesus just the same.

I loved going to church, I sang in the choir, was an Alter Girl and prayed day and night. I often thought of becoming a Nun as a child but knew that there was no such thing in the Episcopal church and was too afraid to ask to change.

As time went by and I grew up my world view changed, many things happened in my own personal world that kept me from Jesus. With that I began to sin, parties, premarital sex, alcohol, drugs, etc. I felt His presence and I knew what I was doing was wrong but because of all the horrible things that had happened I didn’t think it mattered. How could such a loving God allow horrible things to happen to His children and if He loved me so much why would He have allowed me to suffer as He did, I was just a child.

Years went by, I fell in love and had my first-born child out of wedlock. Not only did I love my son’s father with all my heart, but I loved this child like I have never loved anyone before. Within 2 months of his birth, I lost him to SIDS (Sudden Infant Death Syndrome) and I became extremely angry with God.

Haven’t I been through enough in my life? No, I wasn’t perfect, and I sinned like so many others do but I didn’t deserve this. I thought to myself, “There are so many people in this world who are far worse than I am who doesn’t deserve children”. People who steal, rape, kill, cheat and get away with it, have a good life and children. Where is their punishment? From that moment on I completely closed the door on Jesus and walked away from my faith.

Since then, I have had my ups and downs and was blessed with two more children. Been divorced but found love again and remarried. I have beautiful grandchildren and once again fell in love with them more than I did with my own children.

Now, my husband of 14 years, has been diagnosed with End Stage Renal Failure due to type 2 diabetes. I have been fighting my own body since 2016. GI and lung issues, multiple autoimmune & rare disorders, rapid hearing and vision loss and the hits just keep on coming. Then a few years ago I felt this pull, it was a pull I hadn’t felt since I was a child. I knew what it was, but I wanted to ignore it, so I did. Why would I want anything to do with such a “Loving God” when I spent most of my life suffering? Little by little things would appear, posts I’d see on Facebook, things on the news, people who have come back into my life and just these overwhelming feeling I would get.

I stopped one day and thought to myself, not only do I want and need Jesus back into my life, but He wants me too. This is where I need to go back about 20+ years, try to keep up.

20+ years ago, my life was at a crossroad, I was searching for answers to the “WHY” in life and started studying other religions such as “Wicca” or “Witchcraft”. No, I didn’t find the answers I was looking for and things just seemed to continue to get worse. A couple of years ago when I started feeling that pull is the same time, I gave up searching and stopped messing with Witchcraft.

All that hate, anger and darkness I had inside of me was blocking the light of Jesus and once I got rid of it He reached in and took me into his arms. I can look back 14 years ago and see that from the moment I met the man I am in love with and married to now was the beginning of my Journey back to God. My husband is Catholic, born and raised but also has been away from the church for many years. There is a part of me that just knows his Mom & my Mom had a little something to do with all this as well.

My outlook on things past and present have changed, I am more accepting, and I know whatever lies ahead I will have our Holy Mother Mary, our Lord & Savior Jesus Christ, the Holy Spirit and all the Apostles by my side. Jesus can take the wheel and drive me the rest of the way because it is his will.